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Living With HIV Video: A Way to Educate Patients and Provide Support

Dr. Deborah Parham Hopson

Dr. Deborah Parham Hopson, HRSA

The Ryan White HIV/AIDS Program is the largest Federal program devoted to a single disease. Every year more than half a million people living with HIV/AIDS in the United States receive treatment. That is the foundation from which our Program is built. The involvement of the HIV/AIDS community continues to be central to our success over the last twenty-plus years of our Program’s history.

As HRSA’s HIV/AIDS Bureau (HAB) staff began working on our web pages to chronicle the history of the Ryan White HIV/AIDS Program, we knew the story of the individuals that we serve had to be told. There is, of course, no one better to speak about living with HIV or to illustrate the diversity of our Program and the resilience of the individuals we serve than the people themselves.

As such, we created a multimedia video entitled “Living With HIV”. In it the individuals served through our Program discuss their experiences in their own words. The video features people from communities across the country talking about living with HIV disease, its associated stigma, and in many ways the extended life expectancy made possible because of antiretroviral medications.

We know in public health that people are more apt to react to prevention and outreach messaging when they can see themselves and the roles they play. The combination of photography, videography, and voiceover to create a truly multimedia product seemed the perfect avenue to achieve this and, of course, the perfect way to hear from each other.

Providers within HRSA’s network and beyond are using the video in trainings and support groups across the country to help initiate conversations and break down stigma. And more recently, it was included in a Black History Month presentation conducted at the Department of Justice (DOJ) in order to help educate DOJ employees about stigma, discrimination, and the right to access high-quality health care.

To increase visibility we’ve added the video to HRSA's YouTube channel Exit Disclaimer and promoted it through our HAB electronic newsletter to our grantee community and other health care providers. One viewer commented that it was “a very inspirational video.” In addition, it can be downloaded from our history site.

We plan to continue this tradition and include other consumer videos. Involving recipients of the services of the Ryan White Program and hearing about their concerns enables us to use this information in program planning and is, in fact, a major tenet of our Program and a running theme throughout our history.

A note from the AIDS.gov team: What HIV/AIDS related videos have you made? How do you promote them? Are there other video resources you use to increase awareness of the impact of the epidemic on individuals? Leave a blog comment to share.

Comments

  1. Barbara Boone says:

    Hello,
    I just watched the “Living with HIV” videos (all three of them) and absolutely LOVE them, especially Curtis’ and Darlene’s stories. I work in corrections (HIV education and peer education)and don’t have computer/Internet access there, but I can bring in DVDs. Is there a way I could get these videos on DVD? I’m looking forward to hearing from you. Thanks for these moving accounts! I KNOW they’ll touch people.
    Sincerely,
    Barbara Boone

    • Felix Sirls says:

      Wonderful film, would love a copy for my support group. Being positive over 29 years and be an being active in the community educating, teach and advocating it is great to have new avenues. If you send me an address I will send one of my poetry books, much of it is about HIV

    • I also work in corrections and would love to share these videos with the inmates. Is it possible to have this series on DVD?
      As Ms. Boone said, I know these will definitely impact the high risk populations we work with.
      Thank you,
      tina

  2. Thank you for your comment and the work you do! The videos (which are located at http://hab.hrsa.gov/livinghistory/voices/index.htm) can be burned on a blank DVD. There’s an option on the lower left hand side of the Living History Website to download the videos; they can be downloaded in high or low definition. If you have any questions or need assistance please contact the HRSA press office at press@hrsa.gov.

    HRSA’s HIV/AIDS Bureau

  3. I’m a Detroit HIV outreach worker for the SHAPE program (Stop HIV/AIDS and Addiction through Prevention and Education). Our program is funded by SAMHSA and is the ONLY program of its kind in the U.S. targeting women aged 50 and older among five populations: African American, Arab/Chaldean, Hispanic/Latina, Homeless/Transitional and Veteran women.

    We currently use two videos during our workshops and information sessions for older adults. One video is entitled “Seniors at Risk” and was produced in 2003 by the Detroit Health Department. The other, entitled “AIDS in Black America,” was produced by ABC Television Network in 2006.

    We use these two heavily and though they are a few years old their messages are still timely and well-received by our audiences.

    We also use “3 Needles,” distributed by the National AIDS Fund. The National AIDS Fund also sent us “Documentary for Health & Social Justice. A Film Series about Women and HIV/AIDS and Behind the Scenes.”

    We find the use of videos to be extremely beneficial to small groups of women that we conduct two-day, 2.5 hour HIV/AIDS and substance abuse prevention workshops for within our targeted populations.

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