Identifying Common, Core Indicators to Monitor HHS-Funded HIV/AIDS Prevention, Treatment, and Care Services

On June 7th, the Department of Health and Human Services (HHS) Office of the Assistant Secretary for Health (OASH) held a consultation in Washington, DC to finalize a set of common, core indicators to monitor outcomes for HHS-funded HIV prevention, treatment, and care services.

As many know first-hand, grantees providing HIV services often receive funding from multiple HHS agencies each of which uses a different data system and different indicators, even when they are measuring the same event—for instance, frequency of HIV testing. “This lack of standardization impedes our ability to assess program efforts across HHS-funded HIV services,” stated Dr. Ronald Valdiserri, Deputy Assistant Secretary for Health, Infectious Diseases. “It also complicates grantee reporting without adding substantial opportunities for system-wide quality improvement.”

Consistent with the National HIV/AIDS Strategy’s call for a more coordinated national response to the HIV epidemic, HHS Secretary Kathleen Sebelius has directed HIV/AIDS leaders across the department to develop and implement core HIV indicators, streamline HIV services data collection, and reduce undue grantee reporting burden on HIV services grantees.

In collaboration with its federal and non-federal partners, OASH had previously identified the following seven indicator domains central to the HIV treatment continuum: HIV testing, late HIV diagnosis, linkage to HIV medical care, retention in HIV medical care, antiretroviral therapy, viral load suppression, and housing status. These domains are consistent with the National HIV/AIDS Strategy goals and the Institute of Medicine’s 2012 recommendations Exit Disclaimer on HIV indicators and data systems.

At the June 7th meeting, more than 35 federal, state, and community stakeholders (PDF 74KB) provided input on how best to define and operationalize a single indicator for each of the seven domains for use across all HHS-funded HIV programs providing relevant services.  OASH will carefully consider the input it received, finalize its slate of indicators and their specification, and submit them to the HHS Office of the Secretary by July 11, 2012.

The next step in this process will require OASH to turn its attention to the development of agency-specific operational plans to deploy these core indicators, streamline data collection, and reduce undue grantee reporting burden by at least 20-25 percent. Those assembled for the June 7th meeting identified potential strategies for achieving these goals while maintaining accountability and ensuring quality services provision. The next phase of this project is expected to be finalized by October; full deployment all these streamlining activities is anticipated by Fiscal Year 2014.

We welcome your comments and ideas as this work progresses.  We truly believe that by improving our collection of HIV data we can improve our services, which will ultimately result in healthy outcomes for the persons we serve.


  1. Roszetta Mcneill says:

    The Better Detroit Youth Movement, a 501(c)(3) nonprofit organization and it subsidiary organization G.L.O.W [Girls Leaning on Women] is presenting the HIV/AIDS Awareness initiative “Stomping Out HIV” August 25, 2012 at the Don BOSCO Community Center.

    The August 25th event will be a High School Step Show and Resources fair entitled “Stomping Out HIV”. The step teams will be required to create performances with a theme related to STD/HIV prevention. In between the performances and throughout the event, videos and PSA’s related to STD/HIV/AIDS prevention created by the youth will be displayed to the audience. We will also have resource tables displaying community organizations and services that provide resources for adolescents. The event is free and will have free food, music, STD/HIV resources and testing, raffles ect

    We, at the Better Detroit Youth Movement, need you and your organization to participate in this HIV prevention outreach by being a Vendor or Service Sponsor supplying over 300 participants with vital information about your agency and/or services.

    If you are not the appropriate personnel for this endeavor, please reply with the appropriate data so that the information is routed to the personnel available to assist in this manner.

    If there are any questions, please contact Health Care Provider, Cynthera McNeill, at (734) 560-2632 or Roszetta McNeill at (313) 585-2603

    Respectfully submitted,

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